I wrote this substack post due to my growing frustration with European innovation landscape compared to the US. We seem to follow technological development with at-least about a decade gap. Particularly when it comes to medical research, but others also. That is, if activist groups and political lobbying even allows it to be developed (see chatgpt being banned in Italy).
There is also regulatory burden when it comes to research. In the past year only, it has become exceedingly difficult to do any animal experiments in the Netherlands. This makes sense given the aim of completely 'phasing out' animal research by 2025 . I really hope the new minister of agriculture (Femke Wiersma), from the farmers party, can put a stop to this. I do not understand how supposedly intelligent people believe that animal research can be 'phased out'. Indeed, it is very easy to challenge them on this and receive no satisfying reply. This to me makes it seem more like 'feels over reals' sort of thing. I think a part of the regulatory burden is in part to ensure that the science aligns with ideology, which is perhaps why some places in the US are possibly worse than others.
I am not sure how much this explains. Of course with animal research its easy to say that it explains all of it. But things like GDPR and the research ethics stuff (for human research) seem more influenced by safetyism and ass-covering to me. Here, caution and risk avoidance have become virtues, which makes sense given the median age. I always remember back to the AstraZeneca debacle. Some very very small increase in chance of clots for a certain age group and if you were in this age group you could not get the vaccine full-stop. No matter if the statistics showed that things were actually on the net, positive, or whether you were tired of living under abject tyranny and saw this as a way out. You, as an adult could not make a decision regarding your own well being. Faceless bureaucracy did this for you. Likewise, currently when running any human experiment, it doesn't matter if you want to very much participate in an experiment.
If you have 3 kidneys and the MRI can see this, people can identify you and so this is personally identifiable information and therefore your 'informed consent' means nothing. I see 'consent' as a legacy of classical liberalism. We are paying lip service to it. But actually the consent of the paper pusher, is much more important here than that of the individual.
I really think the current trajectory is ruinous. As I finished off in my post, there are very real consequences to being left behind on the technology game.
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Isn't the problem here mass marketing? The same regulations basically seem to apply across the board, irrespective of the amount of data, nature of the data , or the usage of the data (non-commercial, research). The nature of the data in our case is very clear. Data obtained during human experiment, under informed consent, with a very real physical signature of said consent document.
In such case GDPR should not be a problem, right? Beyond cost of adding and having GDPR-specific incantations in the consent document.
GDPR is pretty vague, so there's a massive chilling effect in which whenever there's a remote possibility that might run afoul, <don't do thing> is the only winning move. Basically anything that might be considered AI (by a clueless bureaucrat) is currently an example of .
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