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Notes -
I think this is what was being discussed: https://en.wikipedia.org/wiki/Dor_Yeshorim
AFAIK it's voluntary and mostly anonymous, they do offer counselling so obviously that can't be completely anonymous. Couples who don't do it just face judgement from the community if they have a child who dies a horrible death from Tay-Sachs at 4 years old.
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